did that manke sense oh and by the way the two headings like the olden in the new one
I'm just going to combine to become one
well it's only is in like two or three days since they fell no one Oh like
short update in the name first in that which I probably should know that I did
and decided I wouldn't start blogging again
alright so usually the pain is really high I don't know what happened because
like usually okay I mean it's really happening we have
like a way to kind of bring it down a little bit right now and this has
happened only one other time we've made me a little bit blue because I think
we've cut pills and habits that aren't supposed to be it's not supposed to be
cut in half right there's no way to make it even and between do so you know um so
think I'll start bringing you along and then this is probably gonna be really
funny to watch math later cuz feel a little cuckoo or loopy hi I should not
be doing any sort of editing or commenting or anything like that on eg
right now because the other time that we did um whatever we have done today I
don't even know how this happens I take the same medications over over and over
and over again I just it happened and I just read you and some of the text
but I said they're really funny is another you really good okay and then
Jackson beauties played in there like are you okay so I'm in the leg room
we are on our way to you know there's appointment and I think last night and
this morning I didn't say but um for stopping outpatient physical therapy and
starting in-home physical therapy but the great news about well we really is
this really good thing or bad thing whatever um okay well it was at home
this will therapy like better for me or was going there really that when the
those little therapy she's going to meet at my ad room this was nervous it's the
one who I used to see before I see the one is these two
today week since I can't think I'm tired
so even that did Bears help my brain is thinking lately and I sleep a lot
this is just gonna be a lot of days of me looking a little less miserable okay
we'll buy it the phone's ringing we went to my doctor's and we're working on
getting the at home little pampy lined up and then we good I love pain clinic
at Stanford tomorrow
what else
she did mention there's a facility like a goatee but it's a like she'd have to
be there I couldn't be there yeah they're talking about like a residential
facility for pain management should be there for like six weeks I think she
thinks at six months that I think that sounds a little excessive well yeah I
think it's deaths in six weeks okay well
oh and by the way the two headings like the olden in the new one I'm just gonna
combine to become one
we are driving - well we're stopped right now and somewhere and when we when
I was in the ambulance apparently well I knew this is where we stop don't we and
just like stopped off then I get in the corner and then the railroad acts like
we're in and out everything but we're on our way to the pain doctor which is in
Redwood thing which is the one that was just office that has the guy with the
piano the last time he wasn't there but if he's there this time I was right step
in yeah no man wasn't there but we do have a plan to start a load of something
what we'll get a call from and then it'll test of emails or something it's
yes and then if that doesn't work then we will try three gabilan which I think
it it sounds similar to gabapentin so I asked if there's any weird side effects
but then I saw in the paper that it used to prevent seizures so we might end up
having a problem with that again and then if that doesn't work then we go
back to cymbalta because I chose that for the third thing because
we did it for like seven months but still new guys it's Friday think and I
still feel like disgusting but I I took you with me yesterday didn't I I can't
even remember and my eyes like actually just like hurt today that's even a thing
I sleep so much these days it's ridiculous but um well I say oh I so
since I was in the hospital and we did an MRI there my outpatient MRIs had been
cancelled but we haven't done the flexion extension and then he wanted
even it just as soon as we finished the MRIs you wanted me to have a follow-up
like within two months of the original appointment but it's the earliest
available is in August so really we're just confused I'm not even 100% sure she
did they didn't say April and we're thinking
they said August but we need to get that figured out because I do we do need to
do the flexion extension just because we've never done those before but I
don't tolerate MRIs very well and you know and so we also need to start doing
the trials of taking it off again we just haven't just subtly wait for
everything to calm down yeah so that's I don't understand why that that
appointment is so far away so hopefully you can get it made earlier because I
was thinking because if he decides to do anything surgically at that point then
my next semester of school is again I'm not gonna be able to go to another
Nestor school or start another to us too because you can't really
do that when you're like on meds and things trying to recover look I need to
answer this person's messages soon but um oh I also I updated my other pain
doctor from San Francisco the one that I said was very explaining him and then I
also updated my rheumatologist so maybe we will start um or we will continue our
pursuit of getting IVIG into my body
guys I feel like so okay so the pan was different it had been different for like
the whole week for like a whole week it was different but now it's it feels like
it's just an extension of my original headache which oh so annoying so um
we're I don't even know what we're gonna do to to make me more functional at this
point we need I kind of have to wait for things to work out because not all that
functional at this level of pain
so at least I have you to talk to them hello I'm super tired but we've taken
this we've taken the collar off for a few minutes because I'm supposed to be
working to strengthen my neck which seems pretty pointless because my arm is
already numb or tingling or whatever and it's only been like five minutes and I'm
getting let's see where are they can you see I got I'm getting a pressure like I
don't know what they call that yeah sore underneath here which is just
a shocker because every day when I was in the hospital they were checking for
that and there was no signs of it except I don't know if they really
checked like buddy yes we that too cuz yeah
I worry about the same nail was when we came home from that other Hospital the
other time so it's not that low but also not really and okay wait to be at its
back on well we didn't we had only planned to
have it offer a little anyways with my hands all weird my eyes feel like the
shaky again which I don't even know what that means because they're not shaking
it's just my vision feel shaky and the head hurts it's not like it didn't hurt
before just hurts more now we are going to visit my friends a cave I just wanted
to get out of our house for something other than doctor's appointment my head
it feels so bad today because we took off the collar like it feels worse than
normal
which by the way it's back to feeling like the other headache has calmed
itself down or at least I have ignored it to the point that it feels just like
an extension of the other headache and
surely I'm not pretty the clouds are out there on game long as well I think so
food of us it's like actually picture worthy
accordingly the homeotic shown the mountain
Jake pictures the mountains so pretty gotta wait to be
party's almost out of battery and I see it
provide to pass a street sign though
yeah look at me
we are taking a detour on our way home because
there's this zebra truck that is parked down the street from our house and I was
too out of it to appreciate it the other times that we've seen it it's right here
look oh my gosh I'm just gonna like turn she passed it
she passed it well there's she passed it
see it see it hurry we're almost out of battery now can they see it here it is
wait wait wait I need you to take an Instagram picture five long fun day and
so we are going grocery shopping my medications ruffled toaster but it's
raining and I'm just getting out of the house just to get out the house so I'm
accompanying them to these errands so I will try to vlog but I'm not sure about
blogging in public good cut out of practice goodie bag getting
prescriptions done from the hospital to a
or to a faraway pharmacy not fun not apparently a smooth transition
especially when we're not even sure who all the people are they're gonna
prescribe these things so then we're like hey Monroe is on call at the time
yeah that's exactly what it was so they're all Reese cribe by different
people so we're going grocery shopping by our house rather than in this parking
lot since they're probably not going to have my prescriptions ready today
Hey look oh my god he almost squished a child multiple children I'm gonna be
really awkward and why I can target wait what is why are you laughing it's your
birthday so do whatever you want at least until mom - yeah but that's
true we're getting birthday cards and birthday things at Target and I'm
sitting in the cart and azuz already emailed or texted with dr. grant and he
did the MRIs and stuff we can move them up at any time just we want my body they
get like stronger before we do it because they're these flexion-extension
apparently are gonna be real rough on my body but we're gonna get them done maybe
in or June instead of August or we could
just wait till August but he feels the same as I do that my neck is probably
the problem and that I don't need to take it off all the time like we were
because why so I damaged that's it not good
exactly hey guys it's I think I don't know if I've walked yesterday waiting
it's Tuesday we went to Nolan's baseball game today and I've just exhausted but I
need I wanted to work on some editing stuff today just because since I'm
finally up like sitting up and doing things might as well and so I'm gonna
well I wear this outfit a lot but I'm going to be wearing this outfit in the
little clips that I have filmed for my this that I'm doing right now editing
job so alright so I'll close out this vlog while I'm at it - since it's been
like six days of vlogging but I don't think that's there's very much but
anyways I'm doing somewhat better I think yesterday I said that the
neurosurgeon said that I we we scheduled my follow-up and everything for really
really far out but from this last hospitalization but we can move it
closer when ty body's stronger so you need to like like great weight rest
weight restoration and all that needs to happen before we can move along with
getting the scans done and everything and he's worried about the cranial
cervical instability therefore I'm still wearing the collar and um something else
something was bleeding I can't remember what that other thing
was but I am going to close this one out so bye thanks for watching and hopefully
I'll get back to like actually vlogging not just saying a few things every day
soon bye
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